Please click on the links below for links to useful websites:
Advances in Clinical Neuroscience and Rehabilitation: The field of neurology and neuroscience moves forward at an alarming pace and it is difficult to keep up with advances. ACNR (Advances in Clinical Neuroscience & Rehabilitation) is designed to overcome that problem, through a combination of unique and innovative approaches.
Anaesthesia UK: Anaesthesia UK is an educational site with training resources for anaesthetic professionals. It provides interactive practice questions, journal abstracts and reference articles for the Primary FRCA, Final FRCA, Irish FCARCSI, European Diploma of Anaesthesiology, American Board examinations, and currently receives over 30,000 page views daily.
(The) Association of British Neurosurgeons: The aim of the Association of British Neurologists is to improve the health and well-being of people with neurological disorders by advancing the knowledge and practice of neurology in the British Isles.
(The) British Association for the Study of Headache (BASH): BASH is the United Kingdom national society member of the International Headache Society (IHS) and the European Headache Federation (EHF). Membership is open to all health care professionals with an interest in headache.
British Association of Oral Maxillofacial Surgeons: Oral and maxillofacial surgery is the surgical specialty concerned with the diagnosis and treatment of diseases affecting the mouth, jaws, face and neck. This website contains information about oral and maxillofacial resources and about BAOMS which we hope will be of interest and benefit to clinicians.
British Dental Association: The British Dental Association (BDA) is the professional association and trade union for dentists in the United Kingdom and was founded in 1880. Membership, which is voluntary, stands at around 23,000. The majority of members are in general practice, or “High Street” practices.
British Medical Acupuncture Society (BMAS): The British Medical Acupuncture Society is a registered charity established to encourage the use and scientific understanding of acupuncture within medicine for the public benefit. It seeks to enhance the education and training of suitably qualified practitioners, and to promote high standards of working practices in acupuncture.
British Society of Clinical and Academic Hypnosis (BSCAH): The British Society of Clinical and Academic Hypnosis is a national organisation of health care practitioners and academics. They are dedicated to advancing the science of hypnosis and promoting the evidence-base for clinical hypnosis as a therapeutic tool, by using research to guide interventions and clinical practice to guide research.
Chronic Pain Policy Coalition: The Chronic Pain Policy Coalition is a forum established in 2006 to unite patients, professionals and parliamentarians in a mission to develop an improved strategy for the prevention, treatment and management of chronic pain and its associated conditions.
(The) Cochrane Collaboration: The Cochrane Collaboration, established in 1993, is an international network of people helping healthcare providers, policy makers, patients, their advocates and carers, make well-informed decisions about human health care by preparing, updating and promoting the accessibility of Cochrane Reviews – over 4,000 so far, published online in The Cochrane Library.
European Federation of Neurological Societies: EFNA’s motto is “Partnership for Progress” and we really do try to achieve our aims by this route, combining the strength and experience each of our member organisations has acquired in the work for its own particular medical condition. EFNA draws together all that experience to unite in a common cause, providing the international medical community, politicians and other decision-makers with an active partner and source of authoritative information across a broad, but extremely important and distinctive area of medicine – brain disorders.
European Headache Federation: EHF dedicates its efforts to improving awareness amongst governments, health care providers and consumers across Europe of headache disorders and their personal and socioeconomic impact.
European Organisation for Rare Diseases: EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 423 rare diseases patient organisations in over 43 countries.
(The) Facial Pain Association: An American TN organisation
Facial Pain Research Foundation: An American organisation funding innovative research projects to end facial pain.
Gamma Knife – this procedure is also undertaken at University College London Hospital – please see – www.gammaknife.org.uk
Great Ormond Street Hospital (GOSH): Since its formation in 1852, the hospital has been dedicated to children’s healthcare and to finding new and better ways to treat childhood illnesses.
Herpes Viruses Association: The Herpes Viruses Association helps to improve life for people with herpes simplex.
International Association for the Study of Pain: IASP brings together scientists, clinicians, health care providers, and policy makers to stimulate and support the study of pain and to translate that knowledge into improved pain relief worldwide. http://www.iasp-pain.org
(The) International Headache Society (IHS): ISH is the world’s membership organisation for all whose professional commitment, whatever their discipline, is to helping people whose lives are affected by headache disorders. http://www.ihs-headache.org
Multiple Sclerosis (American Society): www.mssociety.org
National Migraine Centre: Formerly the City of London Migraine Clinic is a registered national charity independent of the NHS. We have been at the forefront of primary headache research as well as treating sufferers of migraine and cluster headache for over 30 years. We see patients and train GPs from all over the UK.
Net Doctor: Find out all you need to know about the prevention, treatment and management of more than 500 diseases and conditions.
(The) Neurological Alliance: The NA’s purpose is to drive forward implementation of the National Service Framework for Long Term Neurological Conditions across England; to increase understanding of neurological conditions and of the lives of people with those conditions; and, to speak for the neurological community with an authoritative voice.
Organisation for the Understanding of Cluster Headaches in the UK (OUCH): OUCH exists to raise general awareness of the condition within the medical profession and the general public. We offer support and guidance to sufferers and their families and work closely with the Institute of Neurology in London where our Patron, Professor Peter Goadsby, runs the Headache Group.
The Pain Web: A UK resource for health professionals which includes information about the management and treatment of pain.
Pain Relief Foundation: A UK charity which funds research into the causes and treatment of chronic pain and is concerned with the education of doctors and nurses in pain management. It provides self-help leaflets and tapes.
Primary Care Neurology Society: The Primary Care Neurology Society is a network of like minded healthcare professionals, organisations and partnering companies who all share an interest in primary care neurology. The Society’s main aim is to generate greater awareness and interest in neurology among professionals with an interest, or working, in primary care to help improve the quality of healthcare services to people suffering neurological symptoms and defined illnesses/conditions.
Queen Square Radiosurgery Centre – The Queen Square Radiosurgery Centre provides radiosurgery service for NHS and private patients treating brain tumours and other intercranial indications. It is located in the National Hospital for Neurology and Neurosurgery, the UK’s largest dedicated neurological and neurosurgical hospital.
(The) Royal College of Anaesthetists: The College is the professional body responsible for the specialty of anaesthesia throughout the UK, and to ensure the quality of patient care through the maintenance of standards in anaesthesia, critical care and pain management. They publish useful leaflets including this one on nerve damage and one on epidurals for pain relief after surgery.
Royal College of General Practitioners: The Royal College of General Practitioners is the professional membership body for family doctors in the UK and abroad.
Saving Faces: The Facial Surgery Research Foundation – Saving Faces, is the only charity in the United Kingdom solely dedicated to the worldwide reduction of facial injuries and diseases.
Society of British Neurological Surgeons: The Society of British Neurosurgeons supports the study and advancement of neurosurgery.
Stroke Association: The Stroke Association is the only UK wide charity solely concerned with combating stroke in people of all ages.
Talking Health Network: Talking Health is a Network of independent freelance consultants, organisations and individuals supportive of the development of values based, lay led self-management and empowerment training for people living with long-term conditions, and the health and social care professionals that support them.
University College London Hospital : Dedicated to the diagnosis and treatment of many complex illnesses. UCLH specialises in women’s health and the treatment of cancer, cardiac, infection, neurological, gastrointestinal and oral disease. UCLH is home to the world’s largest and influential translational and clinical research portfolios.
United Kingdom Multiple Sclerosis Specialist Nurse Association (UKMSSNA) : A professional membership organisation for Clinical Nurse Specialists in multiple sclerosis and for other health and social care professionals with the interest in the care of people with MS in the United Kingdom.
Walton Centre, Liverpool: The Walton Centre is the only specialist hospital trust in the UK dedicated to providing comprehensive neurology, neurosurgery, spinal and pain management services.
Chronic Pain Policy Coalition: The Chronic Pain Policy Coalition is a forum established in 2006 to unite patients, professionals and parliamentarians in a mission to develop an improved strategy for prevention, treatment and management of chronic pain and its associated conditions.
Clinical Trials: Find out all you need to know regarding them.
Department of Health Long Term Conditions Team: In January 2008, the Prime Minister committed to putting in place a Patients’ Prospectus setting out how the 15.4 million people living with long term conditions in England could access a choice of self care services. Your health, your way – a guide to long term conditions and self care was launched on NHS Choices on 2 November 2008, setting out the support that patients should expect to receive from their Primary Care Trusts and local authorities.
Department for Work and Pensions: The Department for Work and Pensions exists to promote opportunity and independence for all through modern, customer-focused services.
European Federation of Neurological Societies: EFNA’s motto is “Partnership for Progress” and we really do try to achieve our aims by this route, combining the strength and experience each of our member organisations has acquired in the work for its own particular medical condition. EFNA draws together all that experience to unite in a common cause, providing the international medical community, politicians and other decision-makers with an active partner and source of authoritative information across a broad, but extremely important and distinctive area of medicine – brain disorders.
European Headache Federation: EHF dedicates its efforts to improving awareness amongst governments, health care providers and consumers across Europe of headache disorders and their personal and socioeconomic impact.
Medicines and Healthcare Products Regulatory Agency (MHRA): Regulates medicines and medical products in UK- including pain treatment.
(The) National Institute for Health and Care Excellence (NICE): Find out how individual technologies, including medicines, medical devices, diagnostic techniques, and procedures will improve patient healthcare.
Action MS: Northern Ireland’s leading MS Charity.
Action on Pain: Action on Pain is dedicated to providing support and advice for people who are affected by chronic pain. It is run by volunteers many of whom either have or are affected by chronic pain.
Away With Pain: Away With Pain is a website dedicated to providing information and support to those living with chronic pain. A place where people can visit, find comfort and share their experiences if they so wish, hopefully eliminating some of their fear, frustration, loneliness and isolation that can be felt when living and dealing with chronic pain on a dailly basis.
The Brain Charity: The aims of Neurosupport are to provide advice, information and support to people with a neurological condition, their families and care professionals, and to raise the awareness of neurological conditions in the community at large. The Centre has meeting and conference facilities, a dedicated library and database, produces regular newsletters, and provides office accommodation for a number of neurological charities.
(The) Brain and Spine Foundation: Founded in 1992 to help the 10 million people affected by brain and spine conditions in the UK. They are committed to improving services across the whole spectrum of neurological conditions, as well as recognition and awareness of the impact of these conditions.
British Association of Oral Maxillofacial Surgeons: Oral and maxillofacial surgery is the surgical specialty concerned with the diagnosis and treatment of diseases affecting the mouth, jaws, face and neck. This website contains information about oral and maxillofacial resources and about BAOMS which we hope will be of interest and benefit to clinicians members of the public.
CSF Leak Association: The CSF Leak Association is a registered charity in the UK, working to raise awareness of cerebrospinal fluid (CSF) leaks and associated conditions, such as intracranial hypotension.
Depression UK: A national self-help charity promoting mutual support between individuals affected by depression, through pen and phone friend schemes, internet D-UK Chat, and newsletters with many members’ contributions.
Disability Direct: The Disability Information Website – Everything you need, all in one place! Their aim is to empower disabled people to make their own choices and improve their quality of life and independent living opportunities through the provision of information, advice and advocacy. Centred on Derby and Nottingham.
Disability Rights UK: DR UK is itself led by people with diverse experiences of disability and health conditions, from different communities. We work with allies committed to equal participation for all. Together we can be stronger. RADAR is the UK’s largest disability campaigning organisation, with a membership of over 900 disability organisations and individual campaigners.
Dr Foster Health: Dr Foster Health aims to help visitors access impartial, comparative information detailing the quality of NHS and private hospitals, what services they offer and how services compare between these hospitals. They also publish clinically reviewed guides and provide data about specific medical conditions, treatments, waiting times and length of stay. All their services are free and do not require sign-up or registration, and their activities are monitored by an independent Ethics Committee led by key healthcare opinion leaders.
Drugstars: By verifying your medications in the app, you’ll be able to track your progress, receive advice and gain a better understanding of just how your medications are working. At the same time, you’re providing us with valuable data that can affect the development of new and better medicines all around the world.
And yes, we understand how valuable your feedback is: Your data can literally save lives. That’s why we’re paying you for your reviews with ‘stars’ that allow you to support health charities for free.
To cover the cost of these donations, we are distributing our anonymised and aggregated data to companies wanting to better understand patients’ experiences in order to improve their products. But remember, DrugStars is always about you, our users, and we will stay that way. Therefore, we will never give out any information that could lead back to you. We promise.
European Organisation for Rare Diseases: EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 423 rare diseases patient organisations in over 43 countries.
Fibromyalgia Association UK (FMAUK): FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
Healthtalkonline: Healthtalkonline is the award-winning website of the DIPEx charity and replaces the website formerly at dipex.org. Healthtalkonline lets you share in other people’s experiences of health and illness. You can watch or listen to videos of the interviews, read about people’s experiences and find reliable information about conditions, treatment choices and support.
Herpes Viruses Association: The Herpes Viruses Association helps to improve life for people with herpes simplex.
Hypnotherapy Directory: The website is a confidential service that encourages those in need to seek help and to connect individuals with qualified hypnotherapists in the UK.
Living Well with pain: For people who are living with pain. Really useful information and resources to help you live well, despite the pain.
Living with Facial Pain: Leading online support group for Trigeminal Neuralgia (TN) survivors.
(The) Migraine Action Association: The national advisory and support charity for people affected by migriane.
(The) Migraine Trust: The Migraine Trust is a patient focused research driven charity. The charity was founded to improve the lives of people with migraine through research and eduation.
MS Society of GB & NI: The MS Society is the UK’s largest charity for people affected by multiple sclerosis (MS) – about 100,000 people in the UK.
(The) MS Trust: The MS Trust is a national charity. They provide information for anyone affected by, and health professionals working with people with MS.
Overcoming MS (OMS) educates, supports and empowers people with MS in evidence-based lifestyle and medication choices that improve health outcomes.
National Voices: National Voices is a coalition of more than 200 national health and social care organisations, coming together to ensure a stronger voice for all those who come into contact with the NHS and care services, and the voluntary organisations that help them.
NHS Choices: NHS Choices is the online ‘front door’ to the NHS. It is the country’s biggest health website and gives all the information you need to make choices about your health.
Pain Association of Scotland: Pain Association Scotland is a unique organisation that has pioneered the development and delivery of the self-management training aproach to chronic pain throughout Scotland for the last 19 years.
Pain Concern: Pain Concern is a charity offering information and support for people who live with pain, those who care for and about them.
Pain UK: Pain UK is an alliance of charities providing a voice for people in pain founded in November 2011. Since then, the membership base has grown rapidly and they now support charities dealing with all manner of painful conditions, from head to toe.
Patient: Patient is one of the most trusted medical resources online, supplying evidence based information on a wide range of medical and health topics to patients and health professionals.
Patients’ Association: The Patients Association advocates for greater and more equitable access to high-quality, accurate and independent information for patients. Their aim is to reduce health inequalities by helping patients to be better informed and by campaigning for patients to have the right to be involved in decision-making.
Shingles Support Society: Find information on shingles and post herpetic neuralgia: what they are and how they are treated medically, what self-help ideas you can try. On the news page, you will see calls for volunteers for various on-going research projects around the country.
Stroke Association: This Association is the UK’s leading charity dedicated to conquering stroke.
Here are some of the Overseas organisations we have links with:
The Danish Trigeminal Neuralgia Association.
The Young Patients Committee (YPC) assists in fulfilling the mission of the Facial Pain Association by representing the interests of neuropathic facial pain patients under the age of 40. The YPC will make recommendations to the Board of the FPA concerning issues that are of concern specifically to young patients and will develop events, opportunities, and initiatives on behalf of young patients and their families.
