Dear Members and Friends,
I hope this message finds you well. As CEO of TNA-UK, I am constantly inspired by your strength and resilience in living with Trigeminal Neuralgia.
Please know that we are here to support you in any way we can. Our freephone helpline, 08009991899, and Regional Support Groups are available to provide you with the help and support you need.
On that note, I am thrilled to invite you to an upcoming webinar on the topic of “Interventional Management and Neuromodulation of Facial Pain.” on 9th March 2023 at 7.00 for 7.30pm
Dr. Stefano Palmisani, a highly respected Consultant in Pain Management and Neuromodulation at Guy’s and St Thomas NHS Foundation Trust, London, as our guest speaker. Dr. Palmisani’s vast experience in managing facial pain through interventional and neuromodulatory techniques will be invaluable to patients, healthcare professionals, and researchers alike.
I am excited to share with you the vision of how we hope to move TNA forward with research and best practices during the session.
Our Chairs of the medical board, Dr. Georgio Lambru and Mr. Sinan Brazi, will be joining me in this discussion
George is riding the Mallorca 312 For TNA – a message from one of our members.
This year on my birthday (29th April) my husband George is riding the Mallorca 312 for the TNA, the National Charity for Trigeminal Neuralgia.
Why TNA? My mother Sian, George’s mother-in-law, has suffered from Trigeminal Neuralgia, a chronic pain illness, for over 10 years. TN is not a well-known condition, but it is often referred to as the ‘Suicide Disease’ as their no escape from the pain, it is only reduced by energy-zapping medication, it’s known to worsen with age and so far there is no cure.
TN affects every aspect of your life, cold air, loud music, chatting with friends, alcohol, and kissing on the cheek, are all triggers (to name a few). So along with pain, you also experience isolation, lack of confidence and with the medication, intense tiredness. All of which are known to lead to depression and chronic anxiety.
My mum is luckily incredibly strong and receives good medical treatment – but ultimately we want to find a cure and with your donations, we hope to provide TNA with a little help to do just that.
Now onto the amazing challenge George has committed himself to alongside his brother Will and a few of his amazing friends!!
The Mallorca 312 – the longest one day amateur cycling event on the sportive calendar and it’s also one of the toughest. It includes over 5,000m of climbing throughout the 312km and happens early on in the season, which makes training that much harder. The Mallorca 312 time limit is 14 hours to receive your medal and an official finishing time.
I’m unsure why he puts himself through these things – but here we are! AND I’m so proud he’s chosen to do it for such an amazing cause so close to all our hearts.
Good luck Georgey and thank you everybody in advance for your donations – every £1 counts
Easyfundraising
Would you consider an easy way to make a difference to TNA-UK. Through our partnership with over 7,000 brands, Easyfundraising allows you to turn your daily shopping into donations for the cause of your choice, at no extra cost to you. Most brands donate a percentage of your spend, while some donate a flat amount. Signing up with Easyfundraising today could make every day count
As the CEO of TNA UK, I am proud to say that this year’s TNA conference was said by many of you to
“be the best ever conference for TN sufferers.”
“With the two new chairs of the medical board, Dr. Lambru and Mr. Barazi, and our CEO Aneeta we saw some of the most knowledgeable and experienced professionals in the field to share their expertise and insights on TN and facial pain”
“The TNA conference is a truly invaluable opportunity for those who suffer from TN to learn about the latest developments in the management and treatment of their condition.”
Our speakers provide attendees with a deeper understanding of TN and the strategies for managing and coping with pain, giving them hope and inspiration for the future. For me what sets this year’s conference apart is the dedication and passion of our speakers and the new chairs of the medical board. Dr. Lambru and Mr. Barazi, in particular, brought a fresh perspective and unique insights to the conference, making it an even more enriching experience for all attendees.
Regional Support Group Meetings
Here is a list of the upcoming Regional Support group meetings. We hope that you will be able to attend one of the meetings.
Please email the RSG leader.
As always, thank you for your continued support, and I look forward to seeing you soon.
Best regards,
Aneeta
Aneeta Prem MBE JP
CEO of TNA-UK
